Thursday, June 12, 2014

Home with a silver lining...

So, with the news of my failed transplant I immediately fell into a pretty dark place, I didn't want to move, I all but stopped eating, losing pounds in just a few short days.  But with the love and support of my mom and the arrival of my own personal hero (my hubby) I slowly started to snap out of it and begain eating again. The Dr did a bone marrow biopsy that same week and we finally got the results on Tuesday.

Here are all the things that just should not have happened and have all the Drs completely bewildered:

1.  My transplant shoul not have failed;
2.  My cells should not have come back;
3.  And this is the kicker...my cells should not have come back healthy!

The bone marrow came back with no signs of the disease, although we are still waiting on molecular/cyto results.  Right now, they can't tell us what's going to happen since this is the first time anyone has seen anything like this.  I've been told to expect the diease to show up again, we just don't know when.

I have been discharged and am now HOME!  The plan now is to have weekly visits to the local cancer center for monitoring and then back up to Duke once every 4-6 weeks for a biopsy.  The hope is the diease will either not show it's face or be kept at bay until my body is healthy enough for another transplant down the line.

While the Dr feels another transplant is inevitable, I choose to focus on the fact that this has never happened and pray that the disease never comes back.  Either way, by all accounts this is the best result I could have hoped for after a failed transplant.

I'm so happy right now to be home with my family and focusing on regaining my strength.

Thank you again to everyone for all the love and support...keep it coming, I still need it.

4 comments:

  1. You know you have a bunch of love and support right here! :) I am bewildered right along with everyone else but also happy that you are home and feeling better. I love you bunches and can't wait to see you,(whenever that may be) if you'd stop moving around! ;)

    ReplyDelete
  2. I am so happy that you baffled your doctors... You are such a strong and beautiful person, I am in awe if you. I'm so glad that you are back home with your family and loved ones :) You are always in my prayers. :)

    ReplyDelete