Well, what do I say about today...it was a good and bad day. Went to my doctor first thing this morning where I learned that I have been accepted into the research trial I signed up for. It's pretty exciting to know that I will be apart of making stem cell transplants (for people like me with a cord blood donor) a safer process with a faster recovery time. My doctor also did his final exam of me and has cleared me to move forward with transplant. I am as healthy as I can possibly be going into this, which is really, really good news!!
The bad part of my day was saying goodbye to my family. My hubby and the girls left Durham this afternoon and I will not see them again for around 30 to 40 days. With the exception of Face Time of course. I'm not gonna lie, this super sucks. All I want to do is cry and stomp my feet on the ground and say "I don't wanna do this anymore, take me home"! But I know I can't do that, I need to be here, I need to get 100% healthy for them, for me. It's just 4-6 months for the rest of my life...I can do this, I will do this, I have to!!!!!
Tomorrow I go back to the hospital to get my port put in. I have no ideas what to expect, except that I will have three little "wires" sticking out of my chest. It's just to bad I won't be allowed to cover them in pink glitter and make a fashion statement out of them...oh well. :)
Until next time, much love to all.
You can make it through this, 6 months is nothing compared to all the moments you'll get to be there for. It'll be over before you know it, I mean look how fast the last 15 years had gone. :-)
ReplyDeleteSuch a heartbreaking situation - but thank goodness for modern technology allowing you to get this amazing treatment and to stay connected to your family even if you aren't physically there. Sending you strength. And as a mom, I'm wondering what you'll do with your free time?! Will you have any? Do you need some books sent your way?! Also, I'd be really interested to hear more about the cord blood donation. Sending positive energy your way and to your wonderful husband and girls.
ReplyDeleteErika has a point. Look at how long we have been friends, it feels like second grade was just yesterday. 6 months will feel like nothing. Stay strong, you can do this.
ReplyDeleteI can't imagine how hard it was to say by for now to your beautiful family. I hope this time flies by for you. just keep remembering this will let you be there to watch them grow-up into beautiful young women. :) I'm thinking about you and your family.
ReplyDeleteHi Jeannine,
ReplyDeleteBy now, the port is done. That makes things much easier for you rather than IVs and so forth. No big deal in the big picture.
Yes, leaving everyone behind does super suck. That's what I did too. There are some advantages believe it or not.
Keep in mind that you'll be tired/resting for most of those 30 days. And when you don't feel so good you'll be able to concentrate on your own stuff without having to try to fix the feelings of others. That's best.
Also, as you know, having anyone around would just increase the risks too.
Altogether better the way you're doing it. And yes, you can do it.
I've got some other suggestions as you go, but for now, just watch what step comes next. One step after another.
You have all these wonderful people pulling for you. Prayers, thoughts and well wishes. Right on!
Kindness towards yourself and others is your big, big friend.
You'll feel that.
Jeannine,
ReplyDeleteThank you for putting the time and effort in to writing this blog. It will surely help your family and your large group of friends to keep in touch with you. The blog will also help so many others who are now, or maybe be in the future, going through such a serious medical ordeal. And if you are like me, writing is cathartic. Also, trust me, none of us care about grammar or spelling!!!
You are such a strong young woman (bet you get that trait from your wonderful mother). Please know that you are surrounded by love and prayers from people all over the country. This coupled with your faith, will see you through.
Love and prayers,
Crystal