The days are starting to get away from me very quickly. I guess that could be a good thing since all I want is the time in here to fly by so that I can get home.
I don't remember much about Day 6, except for the late part of the night. I had hoped to get some sleep that night, but my body decided that it was time for my first platelet transfusion. And a platelet transfusion, much like a red blood transfusion, requires constant monitoring to make sure I'm not having an allergic reaction. That night I ended up needing three platelet transfusions and one blood transfusion. It was a really awesome night...not really at all!
So come early morning Day 7, I'm told by the Dr that my body was not wanting accept the platelets...go figure. It turns out and I hope I explain this properly, that when you receive platelets from a donor it does not have to be matched like it would if you were receiving blood. Apparently, my body has decided that it wants matched platelets...I'm just so picky. So in the meantime, while I wait for matched platelets, they had to give my some kind of anti platelet rejection meds, which I can happily say worked!!
Day 8....boy what a rough day today was, it was like, Jeannine meet wall, wall meet Jeannine...BOOM! Massive headache all day long, not even oxy was able to diminish it. So that of course meant I couldn't eat, who can with a headache that bad. Towards the end of the day when we were running out of pain reliever options, I deceived to try and eat...big mistake. But now at the end of the day I can happily say that two anti nausea meds, and two Tylenol later, I feel pretty damn good. Just in time for the nursing staff to keep me up all night...hahahahaha!
Jeannine,
ReplyDeleteYep, you are in the thickest, thick of it now, dear. Just hold on. Nausea-headache-feel terrible rollercoaster.
There will be some days (like last) where you just can't eat. Juices! Fruit. I was reduced to apple juice and cherrios for a while. Smelly foods= please NO.
Oh, and I forgot about the headache. Isn't that the most profound headache? I've got an answer for that. Your mama is in your room and there are nurses bugging you every hour anyway. DON'T be bashful asking for pain meds.
Same with sleep medication. As you know the days run together in this difficult stretch. As being awake sucks pretty bad at times; if you want to sleep or sleep longer, have them give you ambien, temazepam or the like.
Do keep drinking water and juice and stay hydrated.
I leave today for Tassajara Zen mountain center where I'll be meditating for ten days. I have a lot of time on a simple black cushion.
Guess who I'll be thinking of?
When I return on May 7th, you'll be doing much better. Just stay with it.
Again:
"When you feel bad.
Know the world is okay.
Even beautiful
And you are too."
Terrific advise from one who has been where you are......Danny. Heed his words of wisdom.
ReplyDeleteEven though I'm not meditation.....I'm thinking of you (and your super mom) every day!!